Sounds very trying having the problems that you are and tiring.  I think the key is finding an Endo that can think outside the square or who specialises in CAH or LOCAH as some simply don’t and can miss the problems completely, especially in LOCAH. 

Maybe Kelly Leight knows of an Endo in your area.  She rns the CARES foundation web site which you can get to by doing a search on Google or going to "People" link at the top of this page and looking for CARES links.  I believe she has a list of good Endo’s.  You might also try the Addisons Board as they have similar problems getting diagnosed and I believe that Aspen (site owner) started compiling a list of Endo’s on there somewhere.  www.healinglight.com

There is a forum on the site.

 

Good Luck in finding one!

Anne-Marie