Yes CAH can be scary ... but it is treatable and children are normal in every way. Do educate yourself and know that fever, injury, vomiting, surgery  - NEEDS more cortef.  Always (REPEAT - ALWAYS) have solu-cortef with you.  Do not believe for a minute that a FEVER is not an emergency - IT IS with an infant and especially with a CAH baby.  Immediately triple the cortef orally and reduce the fever. The fever should reduce within 30 to 45 minutes. And if the infant is legarcic (too sleepy - will not wake) the blood pressure may be too low and electrolytes imbalance and this will cause coma and death (YES - CAH is scary - this is something not to take lightly) Remember you can not overdose with cortef during illness but if you don’t get enough  - he will go into adrenal shock and die. A normal person makes 4 to 10 (repeat 10 times) more cortisol or cortef during illness.  Do you have a solu-cortef injection kit? GET ONE!!

The doctor should be monitoring  the 17-OHP as well as the sodium. And the Plasma Renin.

I have two boys with CAH (salt wasting).  I live in Virginia.

rbertpreston@aol.com