thank you so much for sharing your story with me.  I hope that this feeling of being scared every minute of the day will soon leave me.  I am so afraid of losing him i don’t even sleep at night. I watch him sleep.  Did you feel like you would lose your child when your first was diagnosed or am I just panicing?  Will this feeling go away? Did you ever forget to give your child a dose of meds?  If so what happened?  I am sorry so many questions I just want to be sure.  Thanks again so much.           Genine