Dear Genine,

I tried to email you, but your email address does not work. After reading over your posts, I noticed that you said you brought the baby to Pittsburgh Children’s Hospital. Do you live in PA? If so, PA screens for CAH at birth and I am wondering why your child’s condition was not detected throug newborn screening. If you live in Ohio, OH does not screen for CAH. Given what you have been through, maybe you would be willing to call the chair of the Ohio newborn screening advisory panel and tell him about the horrible ordeal you have been through and urge them to implement CAH newborn screening. You can call or email me about this if you want.

I hope your son is doing better now. If you need a physician referral, please call also because there is a wonderful CAH experienced pediatric endocrinologist in Pittsburgh named Dr. Selma Witchel. I can give you her phone number.

Kind Regards,

Kelly

Kelly R. Leight, Executive Director
CARES Foundation, Inc.
(Congenital Adrenal hyperplasia Research, Education and Support)
973-912-3895
866-227-3737 (toll free)
email: kelly@caresfoundation.org
URL: www.caresfoundation.org
Disclaimer:
Any communication from CARES Foundation, Inc. is intended for informational and educational purposes only and in no way should be taken to be the provision or practice of medical, nursing or professional health-care advice or services.  The information should not be considered complete or exhaustive and should not be used in place of the visit, call, consultation or advice of your physician or other health-care provider.  You should not use the information in this or any CARES Foundation, Inc. communication to diagnose or treat CAH or any other disorder without first consulting with your physician or healthcare provider. Any referral to physicians is provided as a courtesy only.  CARES Foundation, Inc. does not specifically endorse or recommend these physicians.