re: Circadium Rhythm - Endo says no
Oct. 10th, 2002   4:39pm

Continue the dosing until the January appointment and if there is a problem, then change back.    Stick to your guns.  You know why your doing the regime, and you do need to disucss it in more depth with him, but she is your child and your have the tablets--and know the disadvantages of conventional dosing versus the circadian dosing.  

Sounds as if you would have had a feeling about him being reluctant to change.  The thing is, the way that your Daughter was being dosed on conventional dosing is not anywhere near to the levels that her body would make cortisol in some areas of the day.  He is probably conservative in the way he treats children, but this does NOT alter the fact that studies have been done and proven these things.  He needs to update his skills and get with the program and accet that some of his parents may choose this method of dosing.  If I had had any idea that Ash’s Doctor would be so insistent that he were controlled in the traditional way, I would have waited until the next appointment to discuss it without making the change, but I would have taken along an advocate that understood WHY I was doing such.  Since you have however now made the change, you do to some degree feel it is your child and entirely down to you how she get’s her med’s.   As long as that method cover’s the minimum requirement which is to suppress androgens and effect good steady growth, then he really cannot complain.  I therefore feel you should stick with it until January like I said.  Take her height right now at home and her weight as it is before the change.  Write it down in a diary.  Note her height and weight in three-four months time at her next appointment and show him the difference.  YOU are in control here when it concerns side-effects etc or studies proving that this dosing is feasible.  You changed before you spoke to him, because deep down, I think you already know this much and you have plenty of time to prepare yourself for January.  

 

Anne-Marie
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