As I stated earlier, I cannot argue the point as what a parents responsibilities are.  We are in a position of parenting children with a unique disorder.  No tried and true method, one that has only been treated for half a century.  We walk the line of going with what has worked "thus far" and being part of the cutting edge in being in studies.  On top of it all, kids do not respond the same way as other children (and later as adults).  I hear of weight problems, which we have not had.  I hear of severe growth retardation, we have not had this (although we are not at the 50% either).  Then the treatment of girls and what parents choose to do is not one I have had to deal wit either. 

 But bottom line.....no matter how well informed you are,  how much of an advocate for your child you, how much a doctor might resent these efforts (which I have dealt with), ....it is not a wise practice for the majority of parents to go about the business of dosing our children.  I am thankful that I have choices.  So far, I have been satisfied with our doctor, but am willing to drive the 1-2 hours if needed if I see treatment not going as it should.  It is clear you are doing the best you can with the resources you have available.  Parenting a CAh child has taught me alot about not just saying "yes sir, yes maam" to our doctors without questions before hand.  But for most people with access to the internet and read this board, they have choices.  And the doctors we have are more likely to respond to an informed parent than one who does changes on their own and tells the doctor after the fact.  I don’t right up the will before I take it to my lawyer.  I don’t try to fix my car and then ask the mechanic if I did it right.  ETc, etc.  It has been a education to read the studies posted here and I do discuss these issues with our endo.  However, It is one thing to share your success with a regime and encourage others to discuss it with our doctors.  If enough of us do that....than that may become the "norm".  It is another to advocate doing it on your own when your doctor disagrees.  That is the only point where I disagree with you.  As you stated your experiences with past doctors, I just nod my head as I read.  I know exactly what you mean.  If only we could cookie cutter the ones we like.