My daughter finally came home from the hospital yesterday.  We ran around and filled all her prescriptions although the Florinef was a bit of a challenge.  I found it kind of amusing that the supply of Florinef at the first pharmacy was OUTDATED and we had to scrounge around for another pharmacy that had it in-stock.  All the meds are going down fine with one exception - THE SALT!

I’ve spent the past two hours trying find info on how people have gotten their babies to take the salt.  I found the squirting a syringe of salt-water trick several places as well as a couple other methods, but the one thing that I’m very confused about is her dosage.  The endo prescribed that she take three ONE GRAM tablets per day.  So we cut the pills in half and spread them across six feedings giving her a 2oz bottle of salty formula before my wife nurses her.  She absolutely HATES it.  We’ve been able to get her to take most of the 2oz each time through about 30 minutes of starting and stopping.  She coughs, gags, cries, squirts it back out of her nose...anything she can do to get it out of her mouth.  Then she falls asleep and has no interest in feeding.

My question is...doesn’t one gram seem like an awful lot to you?  I wasn’t able to find many posts where people indicated their dosage of salt in grams (I don’t know how I would convert cc’s to grams) but the one that I did see said that their dose was 0.1MG of sodium chloride.  It just seems like three grams per day is an awful lot and I have less than full confidence in our endo’s experience in treating CAH.

Thanks...

Sean