re: Doctor says in CAH loss of height is unacceptable and preventable.
Oct. 27th, 2002   1:17pm
I am 28 yr old, will 29 next month I live in NYC. I was born with CAH and I am 5’0 tall, which I find unusual since everyone in my family is 5’5 and taller. I wish my parents were better informed about the loss of growth I was going to experienced. I hate the fact I was born with way. Going through childhood was not easy for either I nor my family, and as an adult is greater task living day by day. People don’t know much about nor have they heard about CAH, which makes almost impossible to explain at times. I hope that with new medical break through children that are now diagnosed with CAH don’t have to endure the painful childhood that I had.
Ray Quinones
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