Milton you take the same amount that my 120lb friend does, and she is 4’11.  They have never discussed taking Dexamethasone with you? That is taken once a day.

 Is your body very hairy? ( pardon my bluntness)

I’m glad you have found the board, there are lots of nice people here that will try to help you with your questions. I’m not a guy but I have the same condition so you are welcome to write me. I also have a daughter with late onset cah, dxed a few months ago. Take care, Michelle R