Hi Sue,

We’ve had this sort of thing happen a number of different times.  It used to drive me crazy, too.  In the almost three years since my son has started treatment, his doses have often gone up-down-up-down.  As a result, i’ve stopped expecting that it will follow a nice, neat linear pattern. Control, I think, responds as much to momentum, as anything else. 

Year before last, we dropped my son’s dose almost 40% (reducing 6 different times) between February and September, even as he was growing BIGGER.   Same thing, this last summer.  He had been doing just fine on a particular dose for a number of months, then suddenly looked like he needed a reduction about four months later.  We just recently bumped up dose again, back to where it was when we first reduced.  Coincidentally, my son’s dose right now is exactly the same as what it was two years ago, even though he is now 8 cms taller, and 20 pounds heavier.  In between, he has been on both higher and lower doses.  It is not logical, but it seems to be how it happens, sometimes.

My advice to you is not to worry too much about it, if your daughter’s clinical symptoms and test results look good. Doses according to BSA are very general, and just a place to start.