I am 18 n suffer from CAH i searched for my condition the other day because i was curious about the facts etc. I dont really no that much about whats wrong with me only that i have to take steroids (Hydrcortazone and Fluridcortazone) Probably not spelt right) and that it affects my ammune system, I am under a childrens hospital close to me and i have had this condition all my life i also understand their is no such cure for it as yet. I remember when i was born my mum saying they couldnt tell if i was a boy or a girl because of my genital area not being formed etc. When i was at such a young age i had cosmetic sergary on my genitals to make them seem more femanine n i also had another reconstruction on them when i was about 15.  I read it is more commen in girls and also easir to tell if they have the condition or not than it is in boys.  I am just writing this little message to say to all the parents with children suffering from this condition not to worrie i have had it all my life n i will have it all my life. I am 18 n i love life my condition has not stopped me doing anything as long as i am careful and i take my steroids i get to do all the things my friends do i am always out clubbing n stuff n i look like any other 18 y/o. I have had boyfriends etc who havnt even noticed my reconstruction compared to other girls genitals.

 

Please dont worrie i no its easy for me to say being 18 and not having any children my mum worries all the time asking if i have had my tablets n stuff.

 

We r fine even tho we have this condition n still live normal lives.

 

Dont worrie.. Thanks   x x