hi

it is good to hear that there are others out there with cah that are older.  my husband is 33 and has cah and was diagnosed when he was 3 months.  (his older sister also has cah) my husband is a very healthy person.  but i will say that he also has been diagnosed with osteoporosis and takes actonel.  he has had good results with the actonel, he had a 4% bone growth improvement in a year.

my husband currently takes 5mg of predinsone a day. 

take care

tonya