To the person who asked about transferring doctors to go with the one heading up the GH program.  It may be different in other practices, but we have Dr. New as our primary Endo for our son.  That was a requirement and it seems to be justified considering how much monitoring is done.  Why have him go through tests with two different docs?  So, even though we have to drive 3 hours to New York every three months, it’s worth it to us.

We do keep our local Endo up to date on his progress as well as his "well care" ped.  This has served us well as it kept his files current so that if or when he ends up in the ER they will be up to date.

We did not choose our doctor by reputation, as a matter of fact, we had never heard of her before.  We were referred to her by two other endos who told us that she was the only game in town (or in our area)  as far as the GH program went at that time.

We contacted some friends in the theatre who put us in touch with several dancers who had used GH in order to get taller to better their chances in getting a primo role.  (no judgement passing here please) I felt that these people, and the football players that my husband researched,  would be the best judge of side effects.  I felt that these people would be a good group to compare to as they also are not deficient in GH but taking additional doses. One woman was 39 with 3 children and some of the others ranged in age from 21 to 41.  The same was true for the pro football players. 

And yes, it is all trial and error just as it seems to be with the general treatment of CAH.  We all do the best we can with what we know. 

Good luck to you all in your decision making.(:>)