Macarena,

I can relate to your concerns.  Although I am not sure about the medication amounts, as I only know what my daughter has been through in her first 6 months of life, I can relate somewhat to your DNA results.  We just got ours back as well and neither my husband, I, nor our SWCAH little girl has one of the 10 mutations Cornell or NIH says makes up 95% of cases.  They are going to sequence two of her genes to see where the mutation might be.  However, what it might mean is that although your husband shows no mutation, it might be part of the percentage that wasn’t included and not something they look for when doing the DNA tests.  It does make you wonder and worry, though.  I feel for you and your dilemma.  

God bless,

Rebecca