I have a 4 1/2 year old boy diagnosed with SWCAH 7 days after birth. He was treated at 21mg/m2/day as an infant and was severely oversuppressed. He never had salt supplements. By the time he was 2 1/2 yrs old, he was on only 3.85mg/m2/day. At that point I seriously doubted that he had CAH.

Our family had the genetic testing done. It found my husband and I both had a gene for CAH. My son picked up each of ours. So genetically we fit the model. However my son has done very well on low doses of hydrocortisone.

Most dr.s I have spoken with seem to believe there is an "optimal" dosage in kids with CAH.  We have found that our son does much better on a low dose, even though he fits the genetic "rules".

He is currently on 9.5 mg/m2/day and doing well. In fact, he just had the stomach flu 2 weeks ago. I doubled his hydrocortisone for 2 days and did not give him an injection. He threw up only once.

Although I haven’t read anything yet that says there are diffent severities in CAH, yet I am convinced the severity varies for every child.

I guess I would wonder if maybe your child has a mild form? I’ve never stopped treatment, but I do know my son does best on a very mild dose.

Good luck.