SandraHi Margaret,
Just a question, I hope you don’t mind answering. I wanted to know if they ever gave you a height prediction for your son? How does your son feel being 5’4". What are the parents heights? I have a 17month old SV CAH son diagnosed through newborn screening. I am curious as to how other SV kids have done. Did your son get a bone age every year? Were you ever offered growth hormones?
How is your son doing now? Does the CAH seem to bother him at all? Has he ever had a crisis?
WOW!!! I ask alot of questions!! If you would prefer to email me the answers, just click on my name. You can throw in any other info you might think I would want to know also!! :)
Thanks in advance.
Sandra