Anne-MarieI think the problem with the milder type of CAH is that Cortisol and Aldosterone may look normal when taken off and tested at the labs. However, it is the ACTH and the 17 OHP that they need to tests. Cortisol for one would have a wide reference range which some people with mild CAH may accomplish simply because they can make most part of the cortisol---but because they are never quite making enough---they continue making such and this is why it elevates into the normal ranges. Thats one of the reasons why they need to look at the other hormones instead.
No doubt both Doctors are good, but one of them I suspect understands the above and wants to treat and the other possibly doesnt. It’s hard to tell at this stage. If levels of 17 OHP were elevated enough at birth to be picked up as CAH then it is very likely that it is--but that it is mild. So if they appear to be that way when baby is weaned off steroid completely---then they will have confirmation and be able to determine better what needs to be done.
Sometimes if the baby is premature at birth the 17 OHP will be very much higher and give a false result, but if full term and 17 OHP is elevated then it probably is the mild type of CAH.