JennyIt has been quite sometime since I have posted or even visited this board...! I think it has been a year or so...my how time flies!
My daughter is 2 1/2 now--smack in the middle in our family with an older 5 yr. old brother and a 9 month old baby girl. The 2 1/2 yr. old is the only one with CAH. When she was one yr. old, we opted to have the surgery to create a vaginal opening for her, but left the cosmetic surgery for her to decide on when she was older. I didn’t realize until baby girl #2 was born just how viralized our older daughter was. Now she is becoming aware of the fact that she is different, through baths with siblings or whatever...anyhow, she has had a habit of pointing out to us lately that she has a "vagina and penis" and has even given it it’s "own name"--a "vaginis." (Makes me ant to laugh and cry at the same time when she says it.) She even told me the other day that she was a boy, not a girl, because she has a penis. I am assuming this is common behavior at some point with some CAH girls...and so far I am dealing with it just by reassuring her that she is a BEAUTIFUL little girl. She isn’t old enough to go into detail, so I am keeping it simple, trying to continually point out the one simple truth, that she is a beautiful girl. But the truth is, it breaks my heart everytime I hear her talk this way. I don’t doubt we made the right decision on surgery for her--she is so opinionated and strong-willed, I think she would have hated us someday if we had done cosmetic surgery without her being able to have some imput (LOL)! I am also guessing that a lot of this talk is her beinga 2 yr. old, and it is possible that she is not meaning it the same ways that I am taking it. But I do hate hearing her talk this way, and want to be sure I am on the right track with how I am dealing with this, I guess! Has anyone else dealt with this?