We made the trip to Boston Children’s Hospital last week for my daughter’s other medical condition - Reflex Sympathetic Dystrophy (RSD).  We saw the doctors who are regarded as the leaders in this field of medicine in the world.  No magic pills/surgery/etc to "fix" the problem, but lots of suggestions and Kristin took what they said to heart.  She knows she has to learn to be in control, not the chronic pain.   It was interesting that the drs there seemed more concerned about her dose of hydrocortone and the stress she has been under (with constant severe pain since May) than her own endo here is.  I hope to be able to get an appointment with the endo sometime in the next few weeks for a blood draw to see where the 17 OHP is since we have upped her dose of hydrocortone to an intermediate level that we use when she is sick but not requiring a full stress dose.

My question today is this  - if her 17 OHP levels come down to a normal range and everything else looks good, does this mean that the intermediate dose will then become her normal dose as long as she has this chronic pain?  If your body is under constant stress does it every "adjust" to that stress as a "normal" situation or does it always perceive it as additional stress?