Anne-Marie" I don’t know about the cortisol levels going up. It’s interesting though , I mean the only cortisol I "make" is what I take orally and it’s busy keeping a lid on androgens, just having fun here ; ) it’s amazing what it takes for the body to run. "
Well lol... sounded silly knowing that you have CAH and that your headed in the opposite direction with cortisol levels when you engage in hard sports and heavy physical activity, but I was wondering if you boost your cortisol levels before sport as we have discussed in the past by taking extra or double etc? Possibly ok with Hydrocortisone not being too potent, but must have been hard to judge with Prednisone how much extra you needed? Also in some periods of overtreatment I guess it is the same as being stressed over a day or so or doing prolonged heavy activity or physical exertion. iron could be depleted at times like that I guess when your taking higher doses of cortisol or overtreated.
You were on Prednisone for some time and I guess that that is more potent than Hydrocortisone. I wondered if it possibly stayed higher in the blood for a longer period and who knows...may have suppressed or interfered with your ability to absorb any iron in your diet...or even supplements. I could be wrong but if doing a session of sport for an hour or so can cause iron levels to fall for some time afterwards, then taking Hydrocortisone and Prednisone or other steroids in high qualtities..which is the way a CAH’er takes them so that they will last until the next dose, then technically your blood levels of cortisol are higher than others with normal levels of cortisol who have done some physical. I know that calcium interferes with iron absorption also...so your not supposed to take the supplements with calcium supplements and I never took mine with milk for that reason either, just straight water.
If your not replacing that iron constantly, you could I would have thought become easily anaemic...as most people can store iron in the liver, but if your cortisol levels are high. Possibly it is secreted in the peaks just after your dose? Better absorbed a few hours before the next cortisol replacement dose is due? Just trouble shooting here really. I gues if you don’t eat a lot of red meat or foods high in iron this could make it worse. Ashley has always been fine and has enough energy but like I said they do not do iron checks and never have from what I can see in his blood work. Strange that hey? You think that someone would check these things really since the metabolism is affected and absorption of other minerals such as calcium? We eat red meat atleast twice a week though so I presume that he is covered.