Dear Anne-Marie:

I’ve never taken more pred for sports, I really don’t do sports.... OK... I can’t do sports, no coordination here. The gym teachers always felt sorry for me lol. Never did anything but ride those darn horses  but mucking out stalls would be physical exertion.

 When I ws 18, I was told only to up the medication if I was sick and a resident told me that sorta like an after thought . They never stressed that with me...  lol ... never stressed that stress dose. My Endo visits when I was younger went like this. I came in, they did a genital check, they spun me around to the blood lab and the exit door was right there. Nobody mentioned if you didn’t take the Pred and started vomiting you could die. I never learned anything about the results of not enough med or to little med until I came to the Internet. 

When I was 20, a lady endo told me I needed to learn how to inject myself with the meds. I asked her why ? she stated " In case you get your head suck in a fish bowl, you’ll need to take your medication another way" she never stated anything about an adrenal crisis or being sick and needing more med. I was so taken back by her remark that I went into a stunned shock, there was no need for the sarcastic tone in her voice. I often wonder if it is because of the resulting birth defect via CAH that I was was born with that Endos think they can act that way with you? I know that’s irrational but I haven’t had the best of luck with these people. I thought I was over her but sometimes I can still her her voice.  After her, I went to one that never mentioned the word CAH lol he was to busy telling me about his kids that were away at college, all he did was take my blood pressure and give me my pescription and the occasional blood test when I asked.  Then I went to the one that as I was telling him about the clitoridectomy he interupted me stated" Not to minimize what you are telling me but you smell like smoke and I’m going to have a headache all day." Eventually, I went back and told him how hurtful he was and that he could of waited to tell me that I smell like smoke but He had to do it right when I was telling him about that surgery?  It didn’t faze him at all,  had a little smirk on his face when I was telling him how hurtful he was.  The thing is, there isn’t that many Endos around and they all know each other. I’m sorry, I’ve gone off track from your post but I needed to get this stuff out. My new Endo, I hope he is OK .The first thing that I said to him was to please treat me like a human being ( I was thinking to myself and anything else is a gift. )

You pointed out interesting ideas in your post, I’m going to print them off for my new  GP and new Endo.  

thanks,

aimee