My son will be 2 on Feb. 12.  So far he has not had a weight problem at all.  In fact he is thin.  He weight 23lbs.  So far we have had no problems with his CAH except for the first few weeks of his life.  He became deathly ill before his newborn screen returned.  However, once we knew what the problem was everything has been fine.  He is just like any other child.  He looks no different and acts no different.  I wish you the best of luck with your child.

Carrie