hi

our son is 15 months, and has nonclassical or late onset.  we already know of his condition, because my husband has svcah and we made sure our son was tested. 

i have read what the others have wrote and i agree that if it will give you peace of mind then you should have your daughter tested.  you can always have her genetically tested and that way you know if she is a carrier or not.

i don’t know if you and your husband were genetically tested or not.  have you and your husband be genetically tested?  the reason that i ask is because depending on your genetic mutations, might answer the question for you.  say if you and your husband both carry sw genes then your daughter shouldn’t have late onset cah.  because you guys don’t even carry the gene for it.  and as a general rule cah takes the form of the least severe mutation (ex. if you have a sw mutation and a nc mutation, then the child will be a nccah)  so as a pure guess on my part i would say that you and your husband both have sw gene, that is why your son has swcah.

have you talked with ann carlson, at new york.  she is super nice and easy to talk to she could help you decide if you want to have your daughter tested or not.  i kind of think it is a good idea to have everyone tested in the family so that you know for sure and so that you know for later in life

best of luck

tonya