Janet:

They have done so many labs lately it is hard to keep them all straight but they did do an ACTH one for sure.  I know that.  Our doctor is Dr. Daniels at CHOC and we have been very happy.  He and the Endocrine nurse have both stayed late at clinic to talk to us and answer our questions and one night the Dr. called me from home (answering a page) and let me ask more questions for another 45 minutes or so.  Kenny had a mild fever today 100.4 so of course I was freaking out but they walked me through the process of doubling up.  It is all so overwhelming.

Is anyone else familiar with Dr. Daniels?