Hello,

I am new to this MB and I am so thankful for all of your responses. Thank you to each and every one of you. You will probably see a couple of messages from me as I become more familiar with CAH.

I have been so worried about my little girl. She was diagnosed a couple of months ago.

I have a couple of questions:

Does anyone know of an endocrinologist that is considered the best in the USA? I don’t care where I have to go to get my daughter looked at. We live in the west, but I don’t mind going anywhere, even to just confirm my current doctor. I think he is good, but since I know so little about this, I would like a second or third opinion.

Another question: My daughter doesn’t have the SW or SL kind of CAH. Her tests showed okay. What does that mean? What does she have then? Non classical? Does she still need meds? My dr. put her on hydrocortisone. How is it that she got this? I have late onset, I believe, I developed symptoms at age 19. I am not on any meds, and until my daughter was diagnosed I didn’t know what was wrong with me. I went to many doctors with my symptoms, and they told me to see a pysychiatrist and take anti depressants.

Any input would be helpful.

Thank you so much,

Linda