To Macarena
Feb. 9th, 2003   10:33pm

Hi Macarena,

How is your little guy doing? Why is he still on florinef? Any more info on what his diagnosis might be? I was thinking about you the other day because I talked to Kelly Leight and she told me that one of the little boys, whom I met while in NY, has DNA that would classify him as a NC and yet he is a SW. He had a crisis when born and when Dr. New did a salt deprivation test, according to the mom, who I talked to, the little boy didn’t do well. Interesting because by genetics he should be a NC. You can email Kelly and maybe she can put you in contact with this mom.  I don’t know if her son was on  a salt supplement.   I’m glad to hear that Chresten is doing great!!

Take Care,

Sandra

Sandra
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks