SandraHi Macarena,
How is your little guy doing? Why is he still on florinef? Any more info on what his diagnosis might be? I was thinking about you the other day because I talked to Kelly Leight and she told me that one of the little boys, whom I met while in NY, has DNA that would classify him as a NC and yet he is a SW. He had a crisis when born and when Dr. New did a salt deprivation test, according to the mom, who I talked to, the little boy didn’t do well. Interesting because by genetics he should be a NC. You can email Kelly and maybe she can put you in contact with this mom. I don’t know if her son was on a salt supplement. I’m glad to hear that Chresten is doing great!!
Take Care,
Sandra