re: re: To Carrie and Christine
Feb. 12th, 2003   5:42pm

Happy birthday to Carter! 

We have similar stories but Kenny never got the diagnosis.  My hospital has a check at 1 week and he had lost more than 10% of his body weight.  He was 6 - 10 at birth and had dropped to 5 - 9.  We had to go in for daily weight checks also but they never tested his bilirubin.  They just told me to supplement formula with my nursing.  I must have shoved a bottle in his face every second to make sure he was eating - I was so scared.  Needless to say he finally got out of the "scary" stage and they sent us on our merry way.  I live in CA and they don’t do pre-screening here.  I have kept up with the nurse in the hospital who we went to for our daily checks.  I called her last week and told her the diagnosis so hopefully she will be aware and know what to look for if it happens again. 

Take care.

 

Kristin
Rare Disease Search Engine, Homeschool Sites, Online Homeschool, Online Income, Ethical Adsense, Creative writing, Family Web Hosting, Christian Radio, Tulsa Parks