I didn’t realize you were from Michigan Aimee.  I have read many of your post over the past couple of years and have gained alot of insight from what you have to say.  Thanks.  I have to agree with what you said.  We had a similar experience and yes the answer to everything seemed to be give more prednisone.  Any sign or symptom my daughter had we were told "oh yes that is a side effect of prednisone."   Terrible tunnel vision.  Never listened to our concerns regarding our child and that her signs were that of oversuppression.  They still defended their plan of treatment and medication after her 17OHP came back at <6.  They also thought a bone scan every 2 years was appropriate for a growing child.  Well, those are my thoughts.  I get to upset thinking about it.  Just proceed carefully.

              Kris