Dear Kris:

Thank you for your kind words. I enjoy writing and discussing CAH on and of the message board. It’s sad to read that you had the same experience at the U OF M as I did. Tunnel Vision, that’s a good way to describe it. The residents were following the lead of the Endo department heads. I was able to gather that much after reading correspondence between the "team" there. In the medical notes, they discuss cushings syndrome side effects also.   Like you, it is upsetting to me. Going to the U of M clinic was nothing more than going through a mill. Seeing all those different residents and occasionally the head Endo made it cold and impossible to develop any trust in them. When I did just see the one resident with a bit more consistency it didn’t make a difference because all she would do was up the med and then note more side effects the next time I went in.

One positive thing about that place though is that after I turned 17, they started to offer psychological counseling but they got it wrong. What I really would of liked was more how and why about the CAH and prior surgeries and the realization by the Endo and residents that there is actually a little kid attached to this birth defect. I wasn’t some exhibit for them and their surgery didn’t fix anything it only brings up more questions.  Just venting ...no harm.

I hope you now have an Endo that helps your daughter and is able to see her as an individual. I always had a good time at the art fairs in Ann Arbor. Email me any time if you like.

Aimee