My daughter started at 25% in height and was very oversuppressed as a baby until about 6 months old when we got a different endo. (Each visit she would be lower on the chart until she fell off it. No one seemed too concerned except me. Her father is 6’5" and I am 5’8". ) The new endo immediately lowered the dose of Cortef and switched from 2 times a day to 3 times a day. but she still kept going lower on the % charts. At about 2 years old we switched and are now on 4 times a day (3am, 7am, noon and 5pm). This has allowed her to come back on the charts with good levels!!. She is now at 15% height, 35% weight and 75% head (yikes!) Some children are very sensitive to the meds in either or both weight and height. By trying to fine tune the meds and mimic as closely as possible the body’s natural secretion of the hormone, we have allowed our daughter to grow!!!! It took some convincing for our endo to go for it and help from many of those on the message board, esp Laura. I basically wrote a paper and included research abstracts and charts and she contacted other endos and finally agreed. Within 3 months she jumped up in growth curve and levels were within normal. (She said this growth spurt could have been about to happen, but I know better!!) Also, some endos keep these kids at levels that are too low, trying to maintain same levels as people with out CAH. This is bad news!! What was your son’s latest 17ohp and androstiendione? I would at least try some other options before growth hormone. I don’t know much about pediapred but maybe Cortef in small doses would work better as it is shorter lasting?

I recently looked in my daughter’s mouth while brushing and saw what appears to be a cavity:( This has been a big fear of mine. I’m making an appointment right away. Ugh. Sorry to hear about your son’t teeth. Good luck. Julia