Yes - the web is wonderful.  Have you seen the CARES web page? It is a non-profit support group for CAH. http://www.caresfoundation.org/index.html  Go to contact and you can call the director (also a mom or a CAH child). Also click on the register button so that you can get more information about CAH.  It is a flood of emails or anything.  Just a newsletter once or twice a year.

 

Roberta (robertapre@msn.c0m)