Beth,

Julia sounds like she’s doing great....I am glad for you! 

One other question....has she always been on florinef? If she’s not a salt-waster, I’m assuming she is a simple virilzer? I know there are a couple of other kids on this mb...also simple virilizers, also patients at Cornell...who were purposefully taken OFF florinef.  So, I’m wondering what made them decide to keep Julia ON the florinef....does she have a history of elevated renin?

I know different doctors have different approaches...it’s curious when it’s the SAME doctor using a different approach!  My son is also a simple virilizer, but has never been on florinef.  Of course, I’ve always wondered about this.