Contact CARES  and get a new doctor and sue the old one !!! Get on cortef and florinef - if salt wasting CAH - go see Dr. New or someone that specializes in CAH.  You are just lucky that the children are still alive with such malpractice!! If you take a stand on this - less doctor will screw up on other kids!! I know you are thinking why is one okay and other not - I had a son and daughter - (daughter died from adrenal crisis) and the other didn’t ... doctor was not prescribing the right form of cortef ... and daughter suffered more quickly that the son... the son started to show symptoms can then with the death ... the doctor finally realized the mistake and changed the medication or he would have probably died too.  With my daughter’s death - I know doctors can be wrong.  GET A NEW DOCTOR ~!~~!

CARES Foundation, Inc.
P.O. Box 264
Short Hills, NJ 07078

Kelly R. Leight, Executive Director
1-973-912-3895 (in New Jersey)
1-866-227-3737 (toll free out-of-state)
or email: Kelly@caresfoundation.org