Hi!  My name is Robert.  I have two son’s (6 & 10 yrs old) both with SW-CAH.  At the time my oldest son was diagnosed, you couldn’t find CAH on the Internet if your life depended on it.  I guess I just disregarded the idea of looking on the web for information on CAH over the years and roughed it out as best I could.  After awhile, you sort of become your own expert and depend much less on the input of others (with the exception of a good pediatric endocrinologist of course), and I never gave it another thought.  I don’t know what possessed me to look for a CAH forum now, but I’m very pleased to see a site like this available, especially to those parents who’s children are newly diagnosed with CAH.  I don’t have to tell you the terror my wife and I went through when we came within hours of loosing our first son to CAH before the cause of his condition was finally realized, and once that diagnosis is finally made… it’s amazing how “alone” parents can feel, drowning in their fears about the future of their child, and how in the world they are expected to properly manage it.

 

I just wanted to say thank you on behalf of all those parents who don’t have to feel alone, and realize that their children are more than likely going to be just fine!