That’s such a nice message Robert! I’m just sorry this type of site wasn’t available to you when your children were little!  We have a 9month old SWCAH son, and as many on this board, we are so grateful for the genetic testing that was done to find this diagnosis!  This site has many helpful people & it always makes me feel good to hear others doing well!! We don’t have a lot of experience, but after the initial diagnosis when we almost lost him, our little one is really doing great.  So much to be thankful for!  Best wishes to you & your family!