ElizabethEmelia
I wish there was a comprehensive book out there too, but the best that I have found is to do searches on the Johns Hopkins website and on the internet in general. The book mentioned above is available for printing off the internet at the following address: Your Child With Congenital Adrenal Hyperplasia :
http://www.rch.unimelb.edu.au/cah_book/index.cfm?doc_id=1375
Good luck!
Elizabeth