CARES has networking with other parents - go to the CARES web page or call Kelly - a real person ... vs web page!  CARES is a non-profit organizaton for CAH.  Make sure you print the information about adrenal crisis.  Do you have the solu-cortef virals and picture instruction on how to give it.  Do you know a fever can be fatal?

http://www.caresfoundation.org/contact.html

CARES Foundation, Inc.
P.O. Box 264
Short Hills, NJ 07078

Kelly R. Leight, Executive Director
1-973-912-3895 (in New Jersey)
1-866-227-3737 (toll free out-of-state)
or email: Kelly@caresfoundation.org