Hello and Welcome Sherry:

I am new to this site as well.  My 3 year old son was diagnosed with SWCAH about 3 months ago now.  This website has been a life saver for me.  I would also suggest, as other have, that you contact Kelly Leight.  She is wonderful to talk to and really put my mind at ease when we were going through everything.

Best wishes to you and your family.  Feel free to email me if you ever need to "talk".

kristin.nelson@sbcglobal.net

Kristin