re: re: re: re: re: to all
Apr. 12th, 2003   9:06pm

There is no doubt as far as I am concerned that kids with asthma symptoms/CAH need the inhalers---even in temporary periods where they become susceptible to them (i.e. when cortisol levels suddenly fall low or they outgrow their dose over a few months or something).  I would therefore not worry about her being on those inhalers--just thinki of them as being a different method of delivery where cortisol is concerned for the time being.   I found with Ashley that even increased doses of his oral steroid to x5 times more than his normal dose during asthmatic periods did not help on their own.  He still needed the inhalers to open the airways up (respolin) and also the steroid respocort to sooth the irritation in the lungs.  it is the same effect as rubbing a topical steroid cream on a rash really...and it helps to bring things back to normal in a speedier way than if you just gave extra oral doses.  

Hopefully you will come to the same conclusion that I have though in time...that it is a need for the med’s to be adjusted in general.  If she get’s to a stage where she is having many good weeks without inhalers after she has recovered from this episode, then you can assume it is that and I would discuss it with your daughter’s Endo.  She will still need back up inhalers like Ash does for the periods when this occurs.    I noticed though Laura that when i switched Ash’s dosing around to the circadian dosing and we actually stepped his oral dose up just 1.25mg per day that there has been much less of the asthma symptoms.  Of course we are just coming into Winter here so I will have to see how it goes because his asthma seemed more prevalent during the winter and is similar to mine was. 

 

Anne-Marie
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