Please, I haven’t gotten many responses which is hard to believe being that these doctors handle so many surgeries.  If anyone has comments but did not want to post publicly please feel free to email me, my family and I would appreciate any information you may have.  We only want to do the best for our daughter, both of these doctors are a 14  hour trip from here and besides our own conversations with the docs, we would like to be able to have other input so that when we make the trip we make it to the right doctor for us.  Thanks for the comments that have been posted they were of great help and comfort.

My email is accessible by clicking on my name that is in blue (for the newer users of the site)

Thanks in advance for your time.