Roberta,Tonia
You just posted about the medic alert bracelets and what to do in crisis. You have said things along this line many times. The first time I read your words, they frightened me, even though we had already been down that road a few times. I want to THANK YOU! Those words can be hard to hear, but it is reality with our children and I can only imagine the pain of the reality you know. Everytime I want to second guess about solu-cortef or a trip to the ER, or especially when our endo recently said he didn’t feel our oldest daughter was "sick" enough to go to the ER, I always hear your voice (actually my voice, your words from the board:) ) in my head. So thank you thank you thank you Roberta! Please keep being an advocate! I think sometimes it is very easy to second guess ourselves and it is difficult to insist to a doctor that you think they are wrong, but mothers and fathers really do know best. Thanks again Roberta, I think you are a very special person. You’ve probably saved my daughters’s lives on more than one occasion.
Blessings,
Tonia