robertaMagic and Cares are both non-project support groups for CAH. Wisconsin also has a strong support group on yahoo...
Magic has a "chapter" for CAH and CARES is solely for CAH.
The CARES web site has a toll free (no charge) 1-800 phone number and email - contact Kelly and she can help set up a group. I attended her workshop in Houston last year and it was free. Great conference! I started helping her with one in Baltimore but moved right in the middle of it but I am sure it was WONDERFUL...great networking... great presentation from expert doctors!! Kelly@caresfoundation.org is the email.
By the way - my daughter #2 (I have seven children) is moving to Ohio (Columbus) next month - her husband is just out of medical school and will work in a hospital there (small world).
http://www.caresfoundation.org/
CARES Foundation, Inc.
P.O. Box 264
Short Hills, NJ 07078
Kelly R. Leight, Executive Director
1-973-912-3895 (in New Jersey)
1-866-227-3737 (toll free out-of-state)
or email: CARES Foundation, Inc.