Barb,

You should contact Cathy at the MAGIC Foundation or Kelly at CARES Foundation.  I believe there are at least 2 CAH families in the Cleveland area.  We live in Columbus (OH) and I was recently wondering the same thing.  You may also want to ask your endo & staff if you could leave your name and phone number or email address with them to pass onto other CAH families, if they have any.  When you locate people, MAGIC and CARES, may be able to help support you in making your own support group.  Good luck Barb and email me if you like!  My husband and I have 2 daughters, ages 5 and 7, who both have ssw CAH.

Tonia