I am still struggling with Kenny’s diagnosis and there are days when I wonder if he has been mis-diagnosed.  For 3 years we have dealt with sickness after sickness and issue after issue only to be told that "we’re not really sure what was going on but he seems to be fine now so let’s just monitor him for awhile".  I guess there are days when I keep thinking that soon the doctor’s will tell us the same thing.  Even now, Kenny doesn’t seem to be following "the norm" (if there is such a thing) and I wonder if maybe there is something else going on.  It seems the only way to tell for sure is to do the DNA testing.  I am still trying to decide if we want to do this or not.  I’m curious to know why you are asking? 

Best wishes to you and your family.

Kristin