Just wondering if they did DNA,  hormone testing etc..and they think he has CAH, how do you plan on going about proving that he doesn’t.   Are you going to see a different doctor or have more testing? I believe that in order to do another ACTH test they would have to be off of the meds for a few weeks.

Your child is older and if you really think he doesn’t have CAH then you should probably move  with the doctors since the longer he is on meds when he doesn’t need them the more damage it could do to him, (if he doesn’t have CAH).

Sandra