Blood draws are not daily.  It’s a blood spot test which I believe incidently is what we should be doing for our kids actually if we’re going to control this right.  Cortisol needs are like insulin needs ---they change daily.  It’s just that due to diabetes being a more common condition, more Doctor’s have studied about it and recognise the symtoms of problems with it and also many more have done studies and made discoveries with it.

I think if I had the choice between the two, I’d pick diabetes anyday to be honest.  A pin prick here and there and a jab is nothing when your used to it.  If a child has these problems it is only because they don’t happen often enough---not because they happen more frequently.  Children become used to these things.  What they never become used to is ignorance and discrimination because people don’t understand what you have or how serious it can become at times.  I would certainly not say that my child had something inferior to diabetes.  Not in this lifetimes where the treatment is so shoddy and lax in comparison.  Even in places where they are doing more for these kids, it isn’t even a patch on what they do for kid’s with diabetes where monitoring is concerned.  It’s primitive.  This means these kids don’t grow properly and have emotional problems that are not recognized as part of their condition.  Ignorance in other words.   There is a huge difference between knowing many other kids who are like you in your town and feeling supported and blending in more because of that, and then having no one else in your town with the same condition as you and feeling supportless--or feeling like no one really knows what you have.  This is the case with CAH and support is everything in this day and age.  The rest is just something people learn to "get used to."