LynneWhen my husband and I contemplating having another child (our son was diagnosed as SWCAH at 21 days after birth) we asked his endocrinologist to refer us to a specialist in our area for information about medications, genetic testing etc. All the information I received I passed onto my OB. We are expecting a daughter (she was diagnosed with CAH too) in September. My OB, Endo and Pediatrition are all on the same "plan of action" for the pregnancy and birth. You can never have too much information.
Ann Carlson at Dr. New’s office at Cornell in New York is wonderfully supportive and a great source of information.
Also, the Magic Foundation has Dr. Pang on their board and I am sure Kathy (who is the support leader for the CAH Division) would pass along any information she had to you.
Good Luck!