Hi Kim,

 

I am so sorry you have been seeing disappointing results.  I know how frustrating that can be. 

 

My son is 9-1/2, his BA is about 13.  When he was first diagnosed, there was a 6 year gap between BA and CA so, luckily, we’ve been able to bring the two a little closer.  He’s been on the Lupron for over three years.  We are not planning to put him in the NIH Study....I am just interested to see how different people with similar issues fare on different treatment regimens.   

 

I do have some thoughts and other questions for you...I’ll email you with them.

 

Take Care,

 

Carol