SueBPeg
I think your right. The non-profit organization, CARES Foundation, helps families and promotes research. Sending money or volunteering time might be a way we can start doing something today.
CARES Foundation, Inc.
P.O. Box 264
Short Hills, NJ 07078
Kelly R. Leight, Executive Director
1-973-912-3895 (in New Jersey)
1-866-227-3737 (toll free out-of-state)
or email: CARES Foundation, Inc.