I tried last night to post, but for some reason it did not work..

So here it goes again, Nic is 15 SSWCAH he has his blood done at NIH in May results are really scary, 10,000!!!  He has had poor control for about 1 year..  (before NIH he had poor control also, was always hard to control).  So looking for advice on what to ask Dr. I find some of these things so confusing.  Bloods are drawn before meds.

They have changed med’s again to 12.5 hydro. in AM and .25 Dex in the PM + 1 1/4 flornief in AM & 1 pill PM.  He is due to have more bloods drawn in 4 weeks.  But in the mean time what do we do???  They did a catscan on his adrenal’s and said they looked like normal adrenals for CAH kids.  (They are talking about removing the adrenals, not right now but at some point)  You guys have so much Knowledge on this board so please help...  They have also told us he is done growning he has grown 1 inch in 1 year.  Thanks Brenda